Marked With an “S” 

From the day that I was born I’ve been marked with an “S”,
it’s stuck to me like a stamp that has permanently stained my skin. 

Spina bifidascoliosis—the scary diagnoses meant to define me,
but that’s only where my story begins. 

Became a statistic before I could even breathe on my own, 
with a slim chance of survival, yet look how much I’ve since grown. 

Learned to ignore curious stares since I was a child, 
to understand that they were just kids too, and just respond with a smile. 

Sit up with a straight spine, stand tall in my sneakers—some of the things I’ve never done.
Is that, to you, what makes me such a “special” one? 

I’m no superhuman, I don’t see what you do. 
I may wear some stitches and scars, still I don’t need anything from you. 

Despite several surgeries and sicknesses I’ve made it out,
because that’s not what my life is all about. 

Though it may seem, I do not suffer from what I have,
so save your sympathy for someone else, and let me speak on my own behalf.

I’ve got no sensation in my legs, 
but I’m not half of a human, so don’t treat me that way.

Surmounted every stereotype and stunned the world, 
but I am that I am—I’m just a girl.

So call me strong for everything I’ve been through, 
but in your next sentence, make sure to say that I’m a sweet friend, a sports fan, a big sister, and a storyteller too.

~~~
Though I was born with a disability, I’ve never let it affect my entire life or mentality. I’m fortunate to have the best family and friends that treat me as they would any other, therefore I used to think it was silly to take a day to “celebrate” me, because there’s so much more to me than my disability. I always thought, “Why should I be celebrated for simply being me?” I’ve only recently realized that it’s okay to take pride in the things that make us unique from the rest, mine just happens to be my disability. Furthermore, by having a designated day or month for such, I can embrace those within my community and find comfort and familiarity within our shared life experiences. So, Happy World Spina Bifida Day to myself, and to all born just like me!

Little One: A Note to My Younger Self

Little one, we’ve made it this far, two decades of life gone in a flash.
You overcame all odds and it feels now like you have grown up so fast. 

Although navigating the hills of life seems scary now, we won’t let anything get in our way.
You’re going to find your deepest passion, so reach for the stars and you’ll accomplish big things one day.

Someone you’re going to meet very soon will become your best friend.
They’ve always been there for us, so please pray it never has to end.

All your troubles will breeze by like the wind, just keep your head held high.
Take one deep breath for us, but remember that it’s okay to cry. 

Little one, know that you’re making us proud, doing the best that you can.
Above all, stay focused on yourself because we’re still our biggest fan.

~~~
Writing this felt greatly cathartic so I encourage you all to write a note to your younger self!