Marked With an “S” 

From the day that I was born I’ve been marked with an “S”,
it’s stuck to me like a stamp that has permanently stained my skin. 

Spina bifidascoliosis—the scary diagnoses meant to define me,
but that’s only where my story begins. 

Became a statistic before I could even breathe on my own, 
with a slim chance of survival, yet look how much I’ve since grown. 

Learned to ignore curious stares since I was a child, 
to understand that they were just kids too, and just respond with a smile. 

Sit up with a straight spine, stand tall in my sneakers—some of the things I’ve never done.
Is that, to you, what makes me such a “special” one? 

I’m no superhuman, I don’t see what you do. 
I may wear some stitches and scars, still I don’t need anything from you. 

Despite several surgeries and sicknesses I’ve made it out,
because that’s not what my life is all about. 

Though it may seem, I do not suffer from what I have,
so save your sympathy for someone else, and let me speak on my own behalf.

I’ve got no sensation in my legs, 
but I’m not half of a human, so don’t treat me that way.

Surmounted every stereotype and stunned the world, 
but I am that I am—I’m just a girl.

So call me strong for everything I’ve been through, 
but in your next sentence, make sure to say that I’m a sweet friend, a sports fan, a big sister, and a storyteller too.

~~~
Though I was born with a disability, I’ve never let it affect my entire life or mentality. I’m fortunate to have the best family and friends that treat me as they would any other, therefore I used to think it was silly to take a day to “celebrate” me, because there’s so much more to me than my disability. I always thought, “Why should I be celebrated for simply being me?” I’ve only recently realized that it’s okay to take pride in the things that make us unique from the rest, mine just happens to be my disability. Furthermore, by having a designated day or month for such, I can embrace those within my community and find comfort and familiarity within our shared life experiences. So, Happy World Spina Bifida Day to myself, and to all born just like me!

Faith’s Fashion: Wedding Edition

A couple months ago I said “yes to the dress”. I eagerly went shopping for the perfect dress so that I would be ready for the special day that was nearing, and on the 17th of July, I finally got to wear it as a guest to the wedding of one of my best friends, Sarah, and her high school sweetheart, David.

The last time I wrote about my personal attire, we were in a quarantine. In this second installment of what I’ve entitled Faith’s Fashion, I will be detailing what I wore to attend my first-ever wedding.

I have always marveled in putting my own cute, stylish outfits together. While my everyday style typically consists of comfy, baggy graphic tees and black leggings, I also love dressing up nice for special occasions. Because I had never been to a wedding, it took some searching to find the right fit for me. I first had to decide on the look I was going for. Should I dress up elegantly or more casual? What color dress is appropriate for a wedding? Once these factors were made up in my mind, I was on the hunt for the perfect match.

I soon decided on an off-the-shoulder smocked sundress, coral in color, with white embroidered eyelet detailing at the hem.

This simple yet stunning sundress was the perfect look for a summer’s evening out, without being too extravagant. The eyelet detailing added just enough elegance to an otherwise plain dress. The off-the-shoulder sleeves gave the perfect feminine flare. The stretchy material of the smocked bodice provided me comfortability to enjoy the night’s festivities. This was particularly important to me, as it is extremely difficult to find clothes, especially dresses, that accommodate and fit properly on disabled bodies. This dress was lightweight and airy, and allowed me to soak up those sun rays!

The only thing that can elevate any outfit is accessories. For this look I went with a bohemian style, so I wore my taupe, laser cut Kenneth Cole ankle boots. The only other time I had ever worn these shoes coincidentally was back when me and Sarah took our senior pictures together!

Throwback to almost four years ago, when we took this photo during the fall semester before graduating!

The finishing touches to this look included classy white and gold earrings resembling the popular Kendra Scott brand. I used rhinestone hair pins to hold my voluminous beach waves back, so I could flaunt my shoulders in this fun and flirty style.

While I could never have upstaged the bride, I think my first experience dressing up to attend a wedding was a success!

Congratulations to Mr. and Mrs. Aguirre!